I had an amazing encounter this weekend. James and I were camping with our little tribe. We nearly backed out about 10 times because it was so blasted hot and it was supposed to be just miserable, but we decided to go anyway because we had reservations. After setting up camp I took a walk with the twins in the stroller, Avery on her bike and Caden on his special bike that school made for him. Just 3 campsites away from us a mom smiled and commented on Caden's neat bike, and then signed "baby" to her daughter and asked if she could see the babies. I glanced over at her daughter and my heart literally stopped for a second - I knew in an instant she had RTS. It's so hard to know how to approach something like that, y'know? Some moms are ok with lots of questions about their child with special needs and some really don't wish to have it pointed out that it's "obvious". So I eggshelled a bit - I told her my son had special needs, which led to her stating that her daughter did. I asked then if her daughter had a diagnosis. She said yes, and then said, "She actually has Rubinstein Taybi Syndrome" in a way that I've said it many times - the tone said "You've never heard of it and have no idea what it is." I simply said, "Shut up! Caden has RTS too!!!" She teared up and neither one of us could believe it. A small campground in Iowa, the same weekend, just 3 sites away. What are the chances honestly???? Interestingly enough, they had their 6 year old daughter pull some states out of a hat, then they prayed about it and then decided where in that state they would camp, and apparently Pella, Iowa is the place to be (I mean, we already knew that but still),
So we spent a lot of time chatting over the course of the weekend. The similarities are astounding, both socially and medically. Caden and her daughter hugged each other several times, which is something I have NEVER seen Caden just offer to someone else - they both knew they were something special! This family is from Iowa as well. It was just so exciting!!!